Supporting PWSA UK’S First Conference for Families

October 21, 2019

Consensus Gretton are proud to be supporting the PWSA UK ‘A Family Affair’ Conference 2019 which takes place at The Beeches Hotel, Birmingham on Saturday 9th November from 10am-3pm.

The one-day event is an opportunity for parents and carers of individuals with Prader-Willi Syndrome (PWS), to gain knowledge and advice from a range of experts who specialise in this rare genetic condition, that effects one in 15,000 births.

Experts include, Dr Sarah Bernard, Consultant Psychiatrist at South London and Maudsley NHS Trust, who will be presenting a talk on ‘the assessment and management of mental health and behavioural difficulties in young people with PWS’; and Louise Scott from SIBS, an organisation for bothers and sisters of disabled children, who will be sharing expert insights on how disability affects families.

There will also be an ‘Ask the expert’ session whereby parents will have the opportunity to have their unique questions on PWS answered by Professor Tony Holland CBE, Dr Anne Livesey and Mr Chris Smith SRD.

Myles Kelly, PWS liaison officer and Marta Yohannes, Referrals & Partnership Manager at Consensus Gretton, will also be available at the Consensus stand throughout the day to share their specialist knowledge and expertise on supporting individuals and their families with PWS, as well as to provide information and advice to parents on the range of support and accommodation options available.

Myles Kelly said, “At Consensus Gretton, we have been supporting individuals with Prader-Willi Syndrome and their families for over 35 years and have an indepth understanding of the unique challenges individuals and their loved ones can face from early childhood right through to adolescence and adulthood.”

“The PWSA’s annual conference is a great way to bring the PWS community together to share best practice and to support one another. This year, we are really looking forward to supporting parents and carers by sharing some of specialist behavioural strategies we use to help the individuals in our services to minimise anxiety and live happy and fulfilling lives within the local community,” added Myles.   

To find out more about how we support 90 individuals with PWS and their families, please view our cases studies and videos which detail the stories and experiences of mothers and fathers raising a child with PWS. Click here to watch and listen to these journeys.

Parenting with PWS; Our Stories

Katie and daughter Alex’s story >

Jacky, David and son Nick’s story >

Joyce, Andrew and daughter Lydia’s story >

Mandy and daughter Katie’s story >

For more information, including a detailed programme of the event, please go here.