In support of PWS Awareness Month, Consensus Gretton launched their first #PWSandme Campaign Living, Parenting and Working with PWS.  Take a look at some of the inspiring stories that we shared and continue to share about PWS below…

PWS is a rare, genetic disorder affecting one in 15,000 people in the UK. While the condition is characterised by a chronic feeling of hunger and a range of cognitive, behavioural and physical issues, every individual’s experience of the condition is unique.

Watch as people with PWS and their parent’s share their journey’s from early years to adulthood

“Children with PWS, you devote your life to them… because you have to. So to be able to pass the mantle on and say to somebody else ‘I feel comfortable with you doing my job’ is very special.”

Mandy, Katie’s Mum 

Our #PWSandme Case Studies

Read each  individual family’s story of their child’s journey with PWS  

Alex’s Story


Lydia’s story


Nick’s story



Katie’s story


Spread the word: #PWSandme

Help us spread awareness of PWS.

Share our videos, share our tweets, share our stories at #PWSandme

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