Prader-Willi Syndrome is a rare, genetic disorder affecting one in 15,000 people in the UK. While the condition is characterised by a chronic feeling of hunger and range of cognitive, behavioural and physical issues, every individual’s experience of the condition is unique.
In support of PWS Awareness Month every May, Consensus Gretton continue to build their #PWSandme Campaigns which look beyond PWS simply as a condition. Sharing stories and videos of people whose lives have been touched by it and key aspects of PWS like ensuring good mental health, the aim is to create better understanding and awareness.
From what it’s like Living, Parenting and Working with PWS, to telling the story ‘through the eyes’ of individuals who have PWS, our campaigns cover not only the challenges but the good times and moments of joy and pride.
Our #PWSandme campaigns explore personal stories and unique experiences of PWS
Living, Parenting and Working with PWS
From the initial anxiety of the first steps down an unknown path, to the struggles encountered through different stages of life, hear the experiences of Mothers, Fathers, individuals with PWS and their support workers in their own words.
Through my eyes – everyday life for people with PWS
Our film explores what it is like to live with PWS, ‘through the eyes’ of different individuals who have the condition, including the variety of daily challenges an individual can face and the impact this can have on their quality of life and life experiences.
Supporting good mental health and wellbeing
Due to the characteristics of PWS, individuals can experience a range of cognitive, emotional and behavioural challenges, that’s why supporting them with their mental health is a priority. Our stories show how maintaining this as a focus can lead to amazing outcomes.
PWS is characterised by an excessive appetite and a range of cognitive, behavioural and emotional challenges; but with the right support, individuals with PWS can lead a happy, fulfilling life. To learn more, watch our ‘What is PWS?’ animation below.
Learn more about Consensus and our PWS services…
Our current referrals process during the pandemic
Read about how we are supporting people to move into our services during the pandemic and the procedures we have put in place to keep everyone safe, including the individuals we support and our colleagues.
Our current PWS services rated Outstanding
We constantly strive to deliver best practise and quality across all areas of the business to make a real difference to the lives of the people we support with learning disabilities and complex needs.
Our PWS services with placements available
Our homely and supportive services are in attractive rural and town locations and are close to a range of local facilities, so the individuals we support can lead a meaningful and fulfilling life in their local community.